Update on DH

[KathyC]

Saw Karry's post below & thought I should post but don't have any real news. Returned to Iowa City yesterday & saw another new dr. Looks like we will probably be doing more biopsies: they want tissue from the lungs, lymph nodes & possibly another bone biopsy --next wk if oncology/radiology can work it in. This dr says it is obvious our local drs have tried very hard to find out what is wrong but said it was time to move on with this & hopefully get some "real" answers. We have lived since Sept back & forth it is cancer/no it's not cancer. He said his intent is to get us an absolute answer of cancer or no cancer; if it's not cancer we need to know to get the stress off of us & if it is cancer we need to know so we can address it & we need to know how to plan our future--living in limbo is not an option for this dr. Told him our oncologist said that if it's cancer it is stage 4 & there is nothing that can be done to which this dr said they basically told you your time is limited & then they sent you to wait 3 mo for further tests? And I said yes; we aren't scheduled to see our local oncologist til mid Feb for a repeat of 2 Cts to see how much this has spread. Fortunately this dr is getting on this really fast--saw him yesterday & he already called here this a.m. for further discussion & has talked to our local internist twice this a.m. DH's Crohn's disease has reared it's ugly head again & is really creating issues which is another reason we need a diagnosis soon--may be facing surgery for the Crohn's. What gives us hope is that the 2 specialists we have seen in Iowa City both agree that DH does NOT present like a patient with cancer usually does. Haven't been on the board much lately as we have been to a lot of dr appointments due to problems with the Crohn's plus the trips to Iowa City. Rest assured that I will let my Cruise Addict family know when I know something. We're putting all of our hopes that Iowa City will get us an answer & soon. Thanks to all for your concern. Did see that Elliott made it home; so hope that things continue to go well for this young man.

 

[nieciez]

Thanks for the update Kathy. I can't imagine how this stress must be on you and your DH. Just know that you both continue in my prayers.

 

[debowah]

Thanks for taking the time to update. Prayers continue.

 

[JANPEP]

So sorry you still don't have any answer's yet. The fear of the unknown is the worst.
Prayer's continue for both you & your husband.

 

[Donna - dsw]

Kathy - thanks for checking in with us. Hope you get some answers soon (and hope they are good answers).

Hang in there and keep asking and checking till you find someone who can help.

 

[Cruise cutie]

Prayers it all gets worked down, and defined thing to plan with ..and mitigate..

=hugs and prayers will continue....Joanne

 

[sage]

Thanks so much for checking in and for the update. There are some wonderful doctors in Iowa City, and I hope they can find the cause of the problems very soon. I know living with the stress is so very difficult.

 

[popcorn]

Thanks for checking in. Sounds like you have finally got a doctor that is willing to look for some answers and solutions. And that Chrones disease is a real bummer! Two of my kids have it.

Liz

 

[Calgon1]

Certainly appreciate you taking time out of your very busy lives to share your tribulations with us. Of course our prayers continue, that should go without saying, but please know that we are here for you in whatever ways we can help. God Bless.

 

[elliottsmama]

I sam sorry you are still waiting for an answer. That to me is harder than dealing with whatever it is. And thanks for caring about Elliott in your time of distress. If I can be of some help should it be cancer with answers or whatever, please let me know. God Bless

 

[Karry]

=yeah Thanks for checking in, Kathy. I can't add much more to the other very thoughtful wishes, but wanted to send you and DH my prayers. I have a GOOD FEELING about this dr. He really sounds like he is NOT willing to sit until he gets an answer for you. I know I told you before, but from personal experience I know that all it takes is one dr. that gets on the right track and runs with it and sits you down and finally says~ I know what is wrong and how to fix it. Praying this dr. is that person. :angel

 

[BostonsJ]

You two have been through so much. This new doctor seems like he is not fooling around and no nonsence. I'm glad you found him. Hugs and keep us updated. I pray it all can be diagnosed and treated soon.

 

[korinalacount]

Kathy just checking in and saw your post,thanks so much for updating us,continued prayers and hope and much love come your way. Korina

 

[Corky]

Kathy - I've been thinking of you and your husband and I wish both of you the best and my hopes are that this new doctor finds out what is going on soon. Take care. =hug

 

[connie seabee]

Thanks for the update, Let us hope and pray that the new doctors will find the answers needed to help your DH.

 

[conniecat]

Thanks for the update, and congrats on the new dr. Best wishes!

 

[frito]

I know from first hand experience that waiting for test results can be extremely stressful--- A couple of years ago I had to wait a little over two weeks and then wasn't completely sure until after surgery. Luckily I came out ok. I can only imagine what you guys are going through dealing with this for several months.
I sincerely wish you the best possible news and hope you get it very soon. :wave

 

[reggae]

I hope this time of limbo ends soon for you, and you have some real answers. We will keep both of you in our prayers, as always