M
MARIPOSA
Guest
Today's update from Cindy:
Spoke to the doctor myself on the phone today. Elliott will be getting a spinal tap tomorrow. What they think they see is bleeding in the brain. I now remember that they saw some back in October as well that resolved itself. But they think this is new and caused by having basically no platelets. Dr Hayani has given him a lot of platelets and his number is at 70,000 now. Keeping it up there is the challenge. They will also be checking for relapse. His hip problem is muscle related and probably due to the cycosporine
He still is on a lot of pain medicine and uncomfortable. I am not sure what the next step will be but Dr Hayani is doing the spinal and we, especially Elliott, feel better about that. He loves him and feels safe with him. They are also having problems with his pic line now so I am waiting to find out if they need to replace it or what. I am trying to hold it together but today has been a little rough on me. I am tired and I miss the boys. I will be stopping tomorrow on my way home from work and having dinner with them. That is all I have for now. Thanks for checking in.
Spoke to the doctor myself on the phone today. Elliott will be getting a spinal tap tomorrow. What they think they see is bleeding in the brain. I now remember that they saw some back in October as well that resolved itself. But they think this is new and caused by having basically no platelets. Dr Hayani has given him a lot of platelets and his number is at 70,000 now. Keeping it up there is the challenge. They will also be checking for relapse. His hip problem is muscle related and probably due to the cycosporine
He still is on a lot of pain medicine and uncomfortable. I am not sure what the next step will be but Dr Hayani is doing the spinal and we, especially Elliott, feel better about that. He loves him and feels safe with him. They are also having problems with his pic line now so I am waiting to find out if they need to replace it or what. I am trying to hold it together but today has been a little rough on me. I am tired and I miss the boys. I will be stopping tomorrow on my way home from work and having dinner with them. That is all I have for now. Thanks for checking in.